http://arthritis.about.com/od/solvingdifficultissues/a/How-To-Handle-Unsolicited-Advice-About-Arthritis.htm?nl=1
Eve though the article references arthritis, this is also very applicable to fibromyalgia, chronic fatigue, and other chronic illnesses. GOOD advice on how to handle unsolicited advice from others on how to treat your condition! I am always caught off guard, so this article gave me some good phrases to use next time.
Wednesday, September 21, 2011
Wednesday, September 7, 2011
Venus Williams & Autoimmune?
Article about Venus Williams possibly having Sjogren's (autoimmune):
http://arthritis.about.com/b/2011/08/31/sjogrens-syndrome-knocks-venus-williams-out-of-the-game.htm?nl=1
Here's is an article that theorizes it may have been more than Sjogren's, maybe fibromyalgia also:
http://blogs.prevention.com/prevention-news/2011/09/02/venus-williams-is-it-sjorgens-syndrome-or-something-else/
I think it will be interesting to see how this develops for Venus, as we all know how both Sjogren's and Fibro are life-altering chronic illnesses. It's hard to find celebrities who are open about facing such challenging autoimmune illnesses, and its because of the same fears that we all face - the stigma of not being well enough, not being perfect, not being able to perform to the best of our abilities, looking well but not actually feeling well. As a celebrity, sports figure or famous person they are constantly in the spotlight and are under an even higher level of scrutiny than most. So being open about a chronic, debilitating illness could often be a career killer for them, thus they often feel a better move is to keep it quiet.
In a way I feel it is a shame, as I feel we need more on our side who can use their powers of influence to communicate the seriousness of the conditions and the challenges we face, and to inspire. I am proud that Phil Mickelson has come out and been so open about his struggles with psoriatic arthritis (also autoimmune.) So again, I am very curious to follow Venus Williams and her health, I hope she can also (unfortunately) highlight the struggles of chronic illness and be an inspiration to understand and manage chronic illnesses.
http://arthritis.about.com/b/2011/08/31/sjogrens-syndrome-knocks-venus-williams-out-of-the-game.htm?nl=1
Here's is an article that theorizes it may have been more than Sjogren's, maybe fibromyalgia also:
http://blogs.prevention.com/prevention-news/2011/09/02/venus-williams-is-it-sjorgens-syndrome-or-something-else/
I think it will be interesting to see how this develops for Venus, as we all know how both Sjogren's and Fibro are life-altering chronic illnesses. It's hard to find celebrities who are open about facing such challenging autoimmune illnesses, and its because of the same fears that we all face - the stigma of not being well enough, not being perfect, not being able to perform to the best of our abilities, looking well but not actually feeling well. As a celebrity, sports figure or famous person they are constantly in the spotlight and are under an even higher level of scrutiny than most. So being open about a chronic, debilitating illness could often be a career killer for them, thus they often feel a better move is to keep it quiet.
In a way I feel it is a shame, as I feel we need more on our side who can use their powers of influence to communicate the seriousness of the conditions and the challenges we face, and to inspire. I am proud that Phil Mickelson has come out and been so open about his struggles with psoriatic arthritis (also autoimmune.) So again, I am very curious to follow Venus Williams and her health, I hope she can also (unfortunately) highlight the struggles of chronic illness and be an inspiration to understand and manage chronic illnesses.
Tuesday, September 6, 2011
Yoga Helps Fibromyalgia Studies Show
YAY! My only problem is dealing overcoming the chronic fatigue in order to get to the yoga class :) But I love this article, and that more studies are being done to show how good yoga is for us!
http://www.yogabasics.com/connect/yoga-helps-fibromyalgia-patients.html
AND by the way, September is National Yoga Month! Check out the link below to find free classes in your area to give yoga a try! As a fibromite I tell the instructor before class that I have fibro, and sometimes they don't know what that means, but I just tell them that I go at my own pace and if I break into a child's pose for a few not to be offended.
http://www.yogamonth.org/
http://www.yogabasics.com/connect/yoga-helps-fibromyalgia-patients.html
AND by the way, September is National Yoga Month! Check out the link below to find free classes in your area to give yoga a try! As a fibromite I tell the instructor before class that I have fibro, and sometimes they don't know what that means, but I just tell them that I go at my own pace and if I break into a child's pose for a few not to be offended.
http://www.yogamonth.org/
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