Quack Watch

I came across this informational link in a discussion post in the ChronicBabe forums and found it pretty interesting:

http://www.quackwatch.com/01QuackeryRelatedTopics/spotquack.html

It is a good reminder that with everything that we suffer from on a pretty consistent basis, to be on the alert for "quacks" out there who will take advantage of our relentless suffering. The quacks' promises just seem too good to be true, and if we are really suffering we may fall prey! For example, I really want to see an herbalist or nutritionist type person to help me with the supplements I take, but after viewing their info often certain red flags go off. The number one tipoff or lets says turnoff for me is if they want me to buy *their* products only. I feel that a good herbalist/naturopath(?) would focus on guiding me in the effects of the herbs/supplements, and not focus on making me purchase *their* herbs. Another turnoff is that they are usually hundreds of dollars per visit, and of course don't take insurance.

Not every alternative practitioner is a quack. There are nutritionists, herbalists, naturopaths and people that are doing their own research and honestly seeking to help people. More power to them, and I hope those folks will be able to make great strides that will eventually help develop better treatments later down the road. Unfortunately there are people out there who don't have the best interests of patients in mind and are looking to make a profit by taking advantage of people who are hurting and desperate who have had very little luck with traditional practices and are willing to do (and more importantly, pay) anything if it promises to bring some modicum of relief. It's these snake-oil salesmen that make my blood boil, and I think it's important for us to supply ourselves with the proper tools to spot these people, so that when we are at a low, miserable point in our lives when nothing seems to be working and you are at your wits' end, we will be able to tell the difference between those trying to help and those looking to take advantage.

So be careful fibros, quacks will rely highly on your emotional state, desire for relief, need for action, and try to create fear of what will happen if you don't follow their guidelines.   

I also think its a shame that the pharmaceutical and alternative medicine interests can't work together, and that doctors seem to veer first to pharmaceuticals, when in fact supplements may have the same effect! But of course supplements can be much less expensive and available, and I guess we aren't supposed to find that out.....For example - I was prescribed Limbrel for my joint pain, and through my prescription plan it was $50/month. I did a little research, and 1. Limbrel is a food medicine, meaning ITS MADE FROM HERBS!!!! 2. The SAME ingredients are found in OVER THE COUNTER Move-Free Joint supplement! (For less than $50/month of course!!!)

I think with everything that we do, taking charge and being our own health advocates, we have to be on alert for what seems reasonable, and what seems too good to be true, and share with each other the information to know the difference!

*hugs* 

Glucoasmine and Skullcap for Fibro Pains?

One of my biggest aches has been in my knees. In fact that is where all my aches and pains in this fun fibro journey started! By the end of the day my knees hurt so much, and feel like they are swollen as big as basketballs (but they look just fine!) And kneeling on them at all causes pain. (I have to be careful in yoga, and do alternative moves that are non-kneeling.)

Anyhoo, I have been taking Limbrel, which is available only via prescription, and is not actually a medicine - it is considered a medical food product. It is usually prescribed for osteoarthritis to help with inflammation. The main ingredients in it are: baicalin and catechin, which are natural flavonoids from plants. (from Scutellaria baicalensis -- Skullcap, and Acacia catechu -- found in cocoa beans.)


Scutellaria baicalensis (not to be confused with Scutellaria lateriflora-- which can be toxic) is one of the 50 fundamental herbs in traditional Chinese medicine. You can read more about it here: http://en.wikipedia.org/wiki/Scutellaria_baicalensis

I also found this note on the Limbrel website: "For long term use, Limbrel should not be taken together with NSAIDs such as naproxen, ibuprofen, aspirin (except baby aspirin), or with any selective COX-2 inhibitors. NSAIDs and selective COX-2 inhibitors will destroy Limbrel's "balancing" effect."

Anyhoo, so my point! Is that I was at Walgreens and was reading all the Joint Juice, Move-Free, Glucosamine Chondroitin products, to see if any resemble Limbrel. Sure enough! I narrowed it down to: Schiff Move Free Advanced Triple Strength Plus MSM & Vitamin D, which contains Glucosamine, Chondroitin, MSM, and Scutellaria baicalensis and Acacia catechu! (And of course good ol Vitamin D!)


The Walgreens comprable store brand is even cheaper than my Limbrel prescription, so I am going to try it for a month. Will let you know what I think in a month!

I know that the Limbrel has helped ease my knee pains A LOT, as whenever I delay in refilling the script, and go a few days without my body reminds me sure enough with pain! 

Has anyone else tried Limbrel or this Move-Free Glucosamine and Chondroitin?! I am curious other fribromites experiences with these.


I also was not familiar with the "MSM" in the Move-Free. They have some without the MSM (and without Vitamin D), but I figured the more the merrier? Anyhoo, I found these links about MSM, which I thought were interesting:


http://www.infowest.com/business/g/gentle/msm.html

http://www.doctorajadams.com/MSM.html

Please remember to consult your physician before trying anything new. I am not a doctor and no information I provide here should be considered medical advice.The information I share on this website is not intended to replace a one-on-one relationship with a qualified health care professional and is not intended as medical advice.  It is intended as a sharing of knowledge and information from my research and experience. Links to other sites are provided for ease of research. Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of FibroChick. I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else will do that on my behalf. I recommend we all do the same! I encourage you to make your own health care decisions based upon your research and in partnership with a qualified health care professional.