Wow, this study and results are quite surprising! The popular fibromyalgia drugs (Savella, Lyrica, Cymbalta) were rated by patients as making fibro WORSE. The highest rated helpfuls for fibro were lifestyle changes - rest, de-stress, relaxation, good sleep, avoid alcohol. I am glad to see that my yoga, qi gong and massage is also on there and rated as quite helpful, I know they are great aids for me too!
http://curetogether.com/blog/2011/08/10/patients-say-fibromyalgia-drugs-make-things-worse-rest-is-best/
Showing posts with label drugs. Show all posts
Showing posts with label drugs. Show all posts
Friday, August 12, 2011
Monday, September 27, 2010
Quack Watch
I came across this informational link in a discussion post in the ChronicBabe forums and found it pretty interesting:
http://www.quackwatch.com/01QuackeryRelatedTopics/spotquack.html
It is a good reminder that with everything that we suffer from on a pretty consistent basis, to be on the alert for "quacks" out there who will take advantage of our relentless suffering. The quacks' promises just seem too good to be true, and if we are really suffering we may fall prey! For example, I really want to see an herbalist or nutritionist type person to help me with the supplements I take, but after viewing their info often certain red flags go off. The number one tipoff or lets says turnoff for me is if they want me to buy *their* products only. I feel that a good herbalist/naturopath(?) would focus on guiding me in the effects of the herbs/supplements, and not focus on making me purchase *their* herbs. Another turnoff is that they are usually hundreds of dollars per visit, and of course don't take insurance.
Not every alternative practitioner is a quack. There are nutritionists, herbalists, naturopaths and people that are doing their own research and honestly seeking to help people. More power to them, and I hope those folks will be able to make great strides that will eventually help develop better treatments later down the road. Unfortunately there are people out there who don't have the best interests of patients in mind and are looking to make a profit by taking advantage of people who are hurting and desperate who have had very little luck with traditional practices and are willing to do (and more importantly, pay) anything if it promises to bring some modicum of relief. It's these snake-oil salesmen that make my blood boil, and I think it's important for us to supply ourselves with the proper tools to spot these people, so that when we are at a low, miserable point in our lives when nothing seems to be working and you are at your wits' end, we will be able to tell the difference between those trying to help and those looking to take advantage.
So be careful fibros, quacks will rely highly on your emotional state, desire for relief, need for action, and try to create fear of what will happen if you don't follow their guidelines.
I also think its a shame that the pharmaceutical and alternative medicine interests can't work together, and that doctors seem to veer first to pharmaceuticals, when in fact supplements may have the same effect! But of course supplements can be much less expensive and available, and I guess we aren't supposed to find that out.....For example - I was prescribed Limbrel for my joint pain, and through my prescription plan it was $50/month. I did a little research, and 1. Limbrel is a food medicine, meaning ITS MADE FROM HERBS!!!! 2. The SAME ingredients are found in OVER THE COUNTER Move-Free Joint supplement! (For less than $50/month of course!!!)
I think with everything that we do, taking charge and being our own health advocates, we have to be on alert for what seems reasonable, and what seems too good to be true, and share with each other the information to know the difference!
*hugs*
http://www.quackwatch.com/01QuackeryRelatedTopics/spotquack.html
It is a good reminder that with everything that we suffer from on a pretty consistent basis, to be on the alert for "quacks" out there who will take advantage of our relentless suffering. The quacks' promises just seem too good to be true, and if we are really suffering we may fall prey! For example, I really want to see an herbalist or nutritionist type person to help me with the supplements I take, but after viewing their info often certain red flags go off. The number one tipoff or lets says turnoff for me is if they want me to buy *their* products only. I feel that a good herbalist/naturopath(?) would focus on guiding me in the effects of the herbs/supplements, and not focus on making me purchase *their* herbs. Another turnoff is that they are usually hundreds of dollars per visit, and of course don't take insurance.
Not every alternative practitioner is a quack. There are nutritionists, herbalists, naturopaths and people that are doing their own research and honestly seeking to help people. More power to them, and I hope those folks will be able to make great strides that will eventually help develop better treatments later down the road. Unfortunately there are people out there who don't have the best interests of patients in mind and are looking to make a profit by taking advantage of people who are hurting and desperate who have had very little luck with traditional practices and are willing to do (and more importantly, pay) anything if it promises to bring some modicum of relief. It's these snake-oil salesmen that make my blood boil, and I think it's important for us to supply ourselves with the proper tools to spot these people, so that when we are at a low, miserable point in our lives when nothing seems to be working and you are at your wits' end, we will be able to tell the difference between those trying to help and those looking to take advantage.
So be careful fibros, quacks will rely highly on your emotional state, desire for relief, need for action, and try to create fear of what will happen if you don't follow their guidelines.
I also think its a shame that the pharmaceutical and alternative medicine interests can't work together, and that doctors seem to veer first to pharmaceuticals, when in fact supplements may have the same effect! But of course supplements can be much less expensive and available, and I guess we aren't supposed to find that out.....For example - I was prescribed Limbrel for my joint pain, and through my prescription plan it was $50/month. I did a little research, and 1. Limbrel is a food medicine, meaning ITS MADE FROM HERBS!!!! 2. The SAME ingredients are found in OVER THE COUNTER Move-Free Joint supplement! (For less than $50/month of course!!!)
I think with everything that we do, taking charge and being our own health advocates, we have to be on alert for what seems reasonable, and what seems too good to be true, and share with each other the information to know the difference!
*hugs*
Tuesday, August 10, 2010
Xyrem for Fibromyalgia?
Intersting article from About.com about a drug going through trials now for possible approval. Sounds good, the science of it makes sense, but then you get to the "possible serious" side effects and sounds scary!
http://chronicfatigue.about.com/b/2008/06/08/narcolepsy-drug-for-fibromyalgia-treatment.htm
http://chronicfatigue.about.com/b/2008/06/08/narcolepsy-drug-for-fibromyalgia-treatment.htm
Thursday, April 22, 2010
REST FOR LESS! WIth Lunesta. OK, I'll try it.
So got the results back from my sleep study. No sleep apnea and no restless leg (which I kind of already knew, even though my Dad sufferers from these, I did not think I did.) But I did show a very porr sleeping pattern (duh! is why I did to the sleep study!) Anyhoo :) So neuro doc wants me to try Lunesta. I told him I tried Ambien to no avail. He said Lunesta is a little different. Ok, so sure, I'll give it a whirl. Esp since I found these savings programs:
SAVE UP TO $50 on EACH of your next 12 Lunesta Prescriptions! EVEN IF You have insurance with a copay! $50 OFF EACH COPAY!!
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