55 Responses to "But You Look So Good"

This is GREAT!! I love it. I do get this a lot, "but you look so good" and I am always stumped at what to say so I just smile and move on, irritated. Even though I don't look sick, I still am sick and suffer! In an effort to try and live a semi-normal life unfortunately I engage in masking my symptoms, pains, illnesses, trying to remain positive and have a good outlook. I hide it from most everyone, no one knows what I go through on a daily basis. Some of these are gentle reminders for when people think I "look good" and might be "cured."

http://invisibleillnessweek.com/2012/08/14/you-look-so-good/

My 3 favorite are:


- Thanks I wish I felt better
- I'm very good at pretending
- Goo becasue if I looked like I feel I'd scare you to death

Advice for Friends & Family of Fibro Sufferers

THIS IS EXCELLENT, share with those you love:

http://www.healthcentral.com/chronic-pain/c/5949/100602/fibromyalgia

The Invisible Disabilities Advocate

http://www.invisibledisabilities.org/pubs.htm

This book looks interesting, "But You LOOK Good" -- I've ordered it and will let you know.

Please Don't Judge Me

Its tough wanting to do more than I know I am able. I have pushed myself and then been sorry the next day, and days after. Its tougher to try and explain to friends why I cannot go out one night but can go out another. When you are always tired and your feet feel like walking on hot glass after standing on them for just 5 minutes, you start to look at outings differently. And you start planning your week differently. Doctors don't understand fibromyalgia and chronic fatigue, I don't understand fibromyalgia and chronic fatigue, so how do I explain it to my friends and family? I wish they would just let *me* decide when I can and cannot go out, what I can and cannot do. I feel like I am always being judged and not being accepted for who I am. It seems just when I am having a good day and feel I have things under control other start to voice their *opinions* on the way I am living. Especially in South Florida, so many people here are SO judgemental and superficial, it is such a shame. Just accept me for who I am, and instead of reminding me that I am sick and saying "I hope you feel better" please just say "I hope you are having a good day" -- as I will never *feel better* but I WILL have good days and bad days. And let me decide my lifestyle, as unfortunately it is a day-to-day thing I am learning to try and balance.