Lyme Disease and Fibromyalgia?

I've always held the theory that my fibromyalgia and chronic fatigue has been hereditary and lying dormant, and was kicked into full gear when I was bit by tick and faced Lyme Disease attack (stressor) on my body in 2009. Looking back now, I don't think I had the traditional "bullseye" rash but just a big pink blot. Thus I delayed treatment, even diagnosis for the Lyme Disease. It took 4 months to get a diagnosis of Lyme Disease, then fibro and chronic fatigue.

Long story short, I still keep one eye out on Lyme Disease research, studies and community involvement.

When I was diagnosed in South Florida with Lyme Disease it was very hard to find treatment, get any straight answers. I was told Lyme Disease is not common in Florida, in fact many doctors didn't even believe I had it.

I recently came across some articles on a brave young woman, also a Lyme Disease sufferer, who is working to promote better research and education on Lyme Disease, especially in Florida:

http://hhp.ufl.edu/index.php/2013/07/biting-back/

An upcoming symposium on Lyme Disease at The University of Florida:

http://www.epi.ufl.edu/?q=tick-borne-disease-symposium

Has anyone else had experience with Lyme and Fibro / Chronic Fatigue?

My All Natural Solution for Seborrheic Dermatitis

One of the conditions that came along with my fibromylagia was this sudden seborrheic dermatitis on my scalp. It was incredibly itchy and scaly on my scalp. The itchiness drove me NUTS!! I finally have stumbled upon an all natural solution (my doctor just wanted to give me a prescription.)

Dead sea salt! I bought a container in the beauty section of Whole Foods, and made sure it was JUST the dead sea salt, no fragrances or ANY other ingredients besides the salt. ($15) For the first few nights I'd get in the shower and run warm water over my scalp, mix some of of the sea salt to dissolve in a cup of warm water (about 8oz size) and then I'd pour the warm sea salt mixture over the back of my scalp (where the dermatitis was the worse). I have long hair, so I rubbed in the salt mixture and piled on my hair. Then I either stepped out of the shower and wrapped a towel around my head for about 10 minutes, or I'd busy myself wit something like shaving my legs :) The main points to take away are the initial warm water opens up the pores in your scalp, then allow the sea salt to set on your scalp for a few minutes to soak in (5-10 min). Then rinse off. I did this for 3-4 nights initially, and then the remainder of the week I switched to the sea salt mixture (water and the sea salt) in a spray bottle - when I came home from work I'd spray the sea salt water mixture on my scalp, rub it in, wrap with a towel for @ 10 minutes, then step in shower and rinse. I was amazed, after the 1st two days I def noticed less itching and a difference! And, after the first week of treatments, no more itching! So now 1-2 times a week I'll use the spray bottle of salt water treatment just to maintain the clarity of the dermatitis.

Of course if you live near the ocean, just go hang out in the ocean on the weekends! Even more fun!

Also good to note, I had bought some lavender oil to help sooth the itchiness, this did help soothe that - temporarily. While it did not treat/cure the dermatitis, it did help get me through until the sea salt kicked in! (It took me a while to find out the sea salt cure, so the lavender oil was def helpful.)

I hope this helps!

Considering Vegetarianism?

Thinking about going vegetarian? Not sure how or where to start? Here is a great starters guide to download:

http://www.pcrm.org/pdfs/health/vsk.pdf


Also look for vegetarian/vegan meetup groups in your local area! They will be able to share tips and tricks, restaurants ideas and more!

Housekeeping and Fibromyalgia

Yes! Household "chores" drive me nuts, I live by myself and trying to maintain it all and my sanity it a chore in itself! I struggled for the longest time in trying to find the right balance, as I would not have the energy and would let things go, then the clutter would get to me... So now I've learned that little efforts can add up and make a difference, if I can try and tackle one or two things that is better than nothing. I've learned to pace myself. Most people probably do not schedule time in their day to do dishes or fold laundry the way I do, I look at it as a big, daunting, energy draining chore. But I do it. One or two a day, and things seem to work out. And sometimes something as simple as "resting" and getting up during commercials to do something during that time seems to help. (Take out the trash) Simple tasks. I used to come home and try to do everything at once and then sit down and rest for the evening. Now I treat myself right first - come home and rest, then tackle one chore. Rest, then another if able. Etc. The key to my day is rest as much as I need, when I need, even for 10 minutes, sit and chill for a few, put my feet up, take a breather, pace myself. I have tried to find as many things to help me out around the house - a laundry bag cart on wheels with 4 removable bags - this way I presort laundry as I fill them! And I can grab and go each load as needed. I treated myself to the neat-o (its like a roomba) floor cleaner. This is a HUGE deal in my life! I can schedule it to clean when I am out of the house! I pick up a few chairs, rugs, shoes and things it bumps around and away it goes sweeping and cleaning my floors! Once or twice a week away he goes (yes I even gave it a name, he, "Freddy") and it is amazing the dirt and dust he picks up. SO glad to have invested in that! I always have an ongoing grocery list on my smartphone. Sometimes I stop at the store randomly, if I do I can check see what I need ad can quickly grab exactly what all I need. Whenever I run out of anything  (Shampoo, saran wrap, mayo, bread etc!) I add it quickly to the list on my phone. This really helps me stay organized, and FEEL organized and not forget anything!  This is a great article about pacing yourself, baby steps to organization and handling it all, even a move to a new place! You go girl!

http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18388&B1=EM102313F

Do you have any helpful household tips for fibromyalgia or chronic fatigue sufferers?

Eat Your Greens for Fibro!

Yes - Sue Ingebretson, she has it right - eat your greens for health!

I do believe that the better I eat - the better I feel - and the healthier I am, despite the fibromyalgia! I notice a distinct difference in how I feel when I eat healthy (fruits, veggies) and not so healthy (skittles, cookies). Yes, I allow myself cheats, cake, sugar, come on a Florida girl needs her Key Lime pie! But each time I veer from the healthy eats I know what I am in for and I feel the veer and know that eating back on track will again make me feel just that much healthier and better :) It has been a long process, but slowly and surely I have made strides over time (5 years+) to a better lifestyle and diet. In the long run yes it does make a difference, in how I feel, how I look and how I am able to tackle my fibro everyday. Read Sue's 6 Reason's To Eat Your Leafy Greens:


http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18416&B1=EM102313F


Like Sue's article? You should check out her awesome book, FibroWHYalgia! One of the best and my favorites that I've read on fibromyalgia:

Aqua Therapy for Fibromyalgia

Ahhhhh warm water......Yes, sign me up! When in a great deal of pain I do resort to a nice warm shower to help. That's as close as I am able to get so far to an aqua therapy plan for my fibromyalgia. I cannot find a good facility in my area at times that work for me (grrrr) but I do have on my wish list to try someday if possible, as I do believe in the benefits.

Sue writes of the great benefits, why it works and other recommendations here:

http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18426&B1=EM102313F

Have you tried aqua therapy?

Celebrity With Fibromyalgia: Morgan Freeman

I have found several articles and mentionings of various celebrities having fibromyalgia. It would be nice to have a well known celebrity as a spokesperson, who could give us a voice and speak out that this fibro IS REAL.

I understand the fears in speaking out, we all face it, and as a celebrity I can see that even more so your future job opportunities may be in jeopardy if it is known that you have a strange, bizarre debilitating condition.

It begs the question this author spoke to, should they speak out, speak up, step up and be the voice, the face, the force that we need to get fibromyalgia to the forefront to be better recognized, understood, accepted?

http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18432&B1=EM102313F

What do you think?

Fibromyalgia and Vegan and Vegetarian Diets - Are There Links and Benefits?

Interesting: Beginnings of data towards the benefits of a whole foods plant diet for fibromyalgia (worth the watch, the video is @ 5 minutes, though they should have had someone else do the voice over as the doctor is a bit monotone.)

http://nutritionfacts.org/video/fibromyalgia-vs-vegetarian-raw-vegan-diets/

I have to admit since I have cut out meats (red meat, chicken, pork) and dairy (cows milk, yogurt) I truly do feel better! I don't even miss those items!

Thoughts? 

The Benefits of Melatonin

I've touted the benefits of using alternative and natural supplements vs prescription drugs for a while now. And I came across this article on melatonin and I found it extremely informative. It is quite long, and I had no idea all this about melatonin! Two of the things I found most interesting is that they 1. are starting to see links between using melatonin to help decrease Parkinson's (my father in 70 and has been diagnosed with) 2. some common prescription drugs - Xanax, Valium, Ativan - actually suppress melatonin levels in the body.

Worth the read:

http://www.prohealth.com/library/showArticle.cfm?libid=18342&B1=EG100213

A Whole Foods Plant Based Diet for Health

So a friend invited me to a "vegan" luncheon this past weekend to try vegan dishes and also watch the movie, "Forks Over Knives." I'll be honest, I had always kind of avoided this movie because I thought it was going to show animals being harmed, in crates etc. (Horrible) And yes, I think that is horrible, but I did not want that to be what made me change the way I eat. No, this movie is not like that at all! It is an EXCELLENT movie - VERY scientific and clinical and fact based, not an in-your-face kind of movie at all. They follow 2 guys throughout a 13 week diet change from eating animal protein to eating a whole foods plant based diet (very similar to vegan.) Let me just say - extraordinary results! And that's just a small part of the movie.

And can I say that I was amazed at the variety of dishes we came up with at our luncheon! Appetizers, entrees and desserts! Mac n cheese, quinoa patties, chocolate "mousse", fudge brownies, spiced carrot cake.

Now back to the movie. So it really got me thinking. Yes, its a healthier way to eat and to live - a whole foods plant based diet. It will help my fibro and CFS even more for sure and help me feel even better. Now for the game plan. The big thing - cut out meat. Well, to tell you the truth I had not cooked meat at home for years, only ate it out, so that's easy (just stop eating meat at restaurants), milk - again I already replaced cows milk with almond milk. At home I cook and eat a lot with chickpeas, brown rice and veggies already, I am already on the game plan and I didn't know it! I did logon to my Pinterest account and deleted all recipes with meat :) Seems temptations outside of the home will be the biggest challenge. I looked up local vegan and vegetarian friendly restaurants. Even local burger joints have some super yummy looking mushroom and falafel burgers! Friends BBQ? No problem, I'll bring my own patties, and a few extra patties in case others are curious ;) Chicken salad? Um, can they substitute with black beans?!  Sounds like I have an attempt a game plan! Now do I have the discipline.... Though my friend said that the more she ate on the plant based diet the better she felt and less she was tempted to go back to her old way of eating!

Here are a few super helpful links I found for creating veggie patties - really, the sky is the limit here! Who needs meat??

http://engine2diet.com/recipe/plant-strong-burgers/
http://www.veganlunchbox.com/loaf_studio.html
http://rmcrayne.hubpages.com/hub/Vegetarian-Burgers-Vegetarian-Burger-Recipes

If you want to watch the movie I believe you can watch it online here at their website, and their website itself is such a  wealth of information! Also check with your local library, they may have a copy of the movie too:

http://www.forksoverknives.com/

This is also related, and an excellent resource and starting point:

http://engine2diet.com


I'd love to know anyone else's thoughts, experiences?

Fibro Comes in Cycles?

Lately I seem to have discovered a trend. It seems no matter what I do, eating healthy, exercising as I can, taking supplements, getting plenty of sleep, avoiding stress, I still have bouts and episodes with fibro that seems to get worse. It seems cyclic - seems to come and go in cycles, so I guess I have to not despair and just keep plodding through with my best practices. Has anyone else noticed this trend in their fibro/cfs?