30 THINGS ABOUT MY INVISIBLE ILLNESS
1. The illness I live with is: Fibromyalgia | Chronic Fatigue | Migraines
2. I was diagnosed with it in the year: 2009 | 2009 | 1988
3. But I had symptoms since: — | early 80's at least
4. The biggest adjustment I’ve had to make is: Not having the energy to do as much as I would like; my whole life is one constant adjustment.
5. Most people assume: I can do something simple (like take vitamins, prescriptions or not eat a certain food) and be back to normal.
6. The hardest part about mornings are: Just getting out of bed is so hard :( I have 7 alarms to get me up!!
7. My favorite medical TV show is: Grey's Anatomy. I'm a sucker for HOT MEN!! :)
8. A gadget I couldn’t live without is: my smartphone; it saves me wasted time and keeps me connected
9. The hardest part about nights is: getting to sleep! No matter how tired and fatigued I am throughout the day, I just cannot fall asleep come bedtime :(
10. Each day I take a minimum of: 24 pills – 4 meds,19 vitamins/supplements, 1 OTC
11. Regarding alternative treatments I: I do as much as I can, LOVE my yoga even though at times I struggle; I have discovered a lot of supplements and foods that help me in stead of prescription meds
12. If I had to choose between an invisible illness or visible I would choose: I would choose to have both if it meant someone else would not have to have one. I would not wish either on my worst enemy :(
13. Regarding working and career: I have a very understanding employer, and with adjustments I am able to keep working so far. I am far along enough in my career that its easy for me to successfully get my required work done.
14. People would be surprised to know: What all I keep inside. There is a lot of misery and anger that I do not share.
15. The hardest thing to accept about my new reality has been: Just trying to feel somewhat normal :(
16. Something I never thought I could do with my illness that I did was: I haven’t gotten there yet, but I am aiming to getting married and have a family :) Some days it seems like it might be an overwhelming challenge.
17. The commercials about my illness: Are WAY too BRIEF!!! They don't even touch the tip of the iceberg when it comes to fibro; It gives a false impression of how we suffer, and a false impression that you "just take Lyrica" and will "be all better."
18. Something I really miss doing since I was diagnosed is: Being able to do more active things
19. It was really hard to have to give up: sexy shoes :(
20. A new hobby I have taken up since my diagnosis is: Meditation; blogging :)
21. If I could have one day of feeling normal again I would: go to the zoo; I am afraid to attempt it these days, afraid I would get too tired and sore
22. My illness has taught me: How invincible I am
23. Want to know a secret? One thing people say that gets under my skin is: I just hate it when people assume things and play armchair doctor with me. Walk a day in my shoes and see how you deal!
24. But I love it when people: Take the time to understand me and what I go through.
25. My favorite motto, scripture, quote that gets me through tough times is: “Don't frown because you never know who may be falling in love with your smile"
26. When someone is diagnosed I’d like to tell them: You'll be ok, you are strong. Your reality is just different now.
27. Something that has surprised me about living with an illness is: The daily struggles, and new struggles and symptoms that pop up :( Each day seems to bring something different/new!
28. The nicest thing someone did for me when I wasn’t feeling well was: Make me laugh, I love laughing.
29. I’m involved with Invisible Illness Week because: I just learned about it and I’d like to make new friends who I can relate to and be there for!
30. The fact that you read this list makes me feel: Appreciative :)
Spread the love and fill out this Meme if you have a Chronic Invisible Illness and want to blog for NICIAW
No comments:
Post a Comment