My fibromyalgia journey - complementary and alternative medicine, an integrative approach, for treating fibro and chronic fatigue, what has helped me - information, resources and research I've found that I want to share to help others regain their wellness!
Friday, April 30, 2010
Good Books About FIbromyalgia
Women and Autoimmune Disease: The Mysterious Ways Your Body Betrays Itself
When looking for books specifically addressing fibromyalgia I really wanted ones written by someone who has FM. It seems to me that unless you have it, you don't really get it! And I am impressed that even with fibro they were able to write their books. That's awesome. I have really taken my time to read through these, take notes, highlight, dog ear pages, go back to again and again etc. The two best references I have found for fibro have been:
The Complete Idiot's Guide to Fibromyalgia, 2nd Edition
The First Year: Fibromyalgia: An Essential Guide for the Newly Diagnosed
Next I need to tackle books on chronic fatigue. But I am too tired to do that today. (ha ha funny joke!) :) Happy Friday!
Tried Zanaflex!
Please remember to consult your physician before trying anything new. I am not a doctor and no information should be considered medical advice. Any information provided should not be used to take the place of advice from your personal physician or other professional. Links to other sites are provided for ease of research. Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of FibroChick. I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else will do that on my behalf. I recommend we all do the same!
Tuesday, April 27, 2010
Good Books for Weight Loss/Management
Rick Gallop's Express GI Diet for Busy People
Flat Belly Diet! Pocket Guide: Introducing the EASIEST, BUDGET-MAXIMIZING Eating Plan Yet
Good Luck! Let me know how it goes!
VOLUNTEERS NEEDED for CFS STUDIES
Two important ME/CFS research studies being conducted at the University of Miami are in need of additional volunteers.
If you are not already a participant, please sign up today. If you are already a participant, please help recruit additional participants for these two important research projects.
The Good Day Bad Day Study
This study is investigating the relationship between immune function and symptom severity. The study involves both those with a diagnosis of chronic fatigue syndrome as well as healthy individuals.
Patients will be asked to come into the university for a total of four visits. During the first visit, you will be asked to fill out questionnaires and receive a complete physical examination. Another assessment will take place when you feel relatively well (Good Day) and another on a day when your symptoms are severe (Bad Day). Then you will be asked to come in for an 18 month follow up. Healthy individuals will also come in for a total of four visits.
All patient volunteers are asked to find a healthy person to participate in the study with them. Spouses and immediate family members are not eligible to participate.
All participants will be paid $20 per visit to cover travel costs.
The study will be conducted at the offices of Dr. Nancy Klimas, 1120 NW 14th Street, Suite 712, Miami, FL 33136.
To register or request additional information please contact: Phones: 305 243-1568 or 305 243-6218. Email: lgarcia2@med.miami.edu or Zbarnes@med.miami.edu.
The TeleHealth Study
This research project is designed to help individuals with Chronic Fatigue Syndrome understand and manage their condition.
Participants will be provided with information about the nature and effects of stress reactions, how to cope and manage stress, and how to take better care of themselves via an innovative home-based program.
To be eligible to participate, participants must be between the ages of 21-65, speak, read and write English fluently, have a telephone line and reside in Dade or Broward counties within the next nine months. Each participant will receive $50 for each completed assessment.
The TeleHealth study is funded by the National Institutes of Health in collaboration with the Behavioral Medicine Research Center at the University of Miami .
For more information, please call: 305-243-1434.
Sunday, April 25, 2010
Friday, April 23, 2010
Is it Fibro, really??
I do remember having a lot of pain that escalated to unbearable joint pain in Dec. 2009. But I don't remember (this fibro fog thing wiping out my memory SUCKS) anyhoo I don't remember very much MUSCLE pain, I mean here or there I have sensitivity to touch. I mean maybe my body ached and I don't remember that specifically? I def rememebr the joint pain, THAT was unbearable and still gets me some days. Pain in my knees, hands, feet, shoulders and elbows. But these don't seem to be part of the fibro pressure points. This I don't understand.
I def have the chronic fatigue though. UGH.
Thursday, April 22, 2010
HOPE & INSPIRATION
- Norman Cousins
(1915-1990)
Look him up, he has an interesting background. He was diagnosed with ankylosing spondylitis (though today doctors suspect it was actually reactive arthritis) and he poo-pooed doctors wanting to but him in the hospital and pump drugs into him. He hypothosized that the positivity of the human spirit could prevail, so he checked out of the hospital and took heavy doses of Vitamin C, Marx Films for healthy deep fits of laughter, and a heavy dose of hope and positivity! And he did prevail! He survived and thrived much longer than any of his doctors predicted. Inspiring. My new personal motto!
REST FOR LESS! WIth Lunesta. OK, I'll try it.
SAVE UP TO $50 on EACH of your next 12 Lunesta Prescriptions! EVEN IF You have insurance with a copay! $50 OFF EACH COPAY!!
https://secure.lunesta.com/lunestaPromos/lunesta-rest-for-less.cfm
Try for 7 Nights FREE!
https://secure.lunesta.com/lunestaPromos/lunesta-coupon.cfm
Wednesday, April 21, 2010
Zanaflex?
Please remember to consult your physician before trying anything new. I am not a doctor and no information should be considered medical advice. Any information provided should not be used to take the place of advice from your personal physician or other professional. Links to other sites are provided for ease of research. Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of FibroChick. I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else will do that on my behalf. I recommend we all do the same!
Tuesday, April 20, 2010
Winston Churchill Inpirational quotes
- Winston Churchill
If you are going through hell, keep going.
- Winston Churchill
The FM / CFS Downward Spiral
Monday, April 19, 2010
Back on track... maybe
Sunday, April 18, 2010
Garfield's Take on Gaining Weight
"We all get heavier as we get older because there's a lot more information in our heads. So I'm not fat, I'm just really intelligent and my head couldn't hold any more so it started filling up the rest of me! That's my story and I'm sticking to it!"
Friday, April 16, 2010
The NEW Criteria for Fibromyalgia Diagnosis - preliminary
http://www.fmnetnews.com/basics-news-criteria410.php
It's been 20 years since the American College of Rheumatology (ACR) published the criteria for the classification of fibromyalgia.
Energy Diet!
Feeling fatigued? Supercharge you meals with the 10 most vibrant foods and you may never have another "energy crisis."
1.) Broccoli. Loaded with nutrients, broccoli offers a huge dose of vitamin C--which has been shown to reduce fatigue by increasing iron absorption--and is a good source of non-dairy calcium. Vitamin C can also keep your adrenal system running strong, which helps stabilize your energy through stressful situations.
2.) Brown Rice. A high-fiber complex carbohydrate that's packed with manganese, amino acids, and magnesium (important in many cellular functions including energy production), brown rice provides a complete meal when paired with lean protein like tofu, fish, or chicken.
3.) Eggs. Very high in protein and choline, which is vital to brain functions like memory, eggs also contain tyrosine, an amino acid that helps your brain produce the chemicals norepinephrine and dopamine, which improve your mental function and keep your feeling energetic.
4.) Green Tea. For calm, alert energvy, sip on green tea. The small amounts of caffeine (30 micrograms) and theanine, an amino acid that stimulates GABA (the calming molecule in brain receptors), produce feelings of relaxation, as well as improve cognition and mood. Green tea also stimulates your metabolism, which may make weight loss easier.
5.) Oats. This breakfast staple, also great in chili, bread, and waffles is a complex carbohydrate that's high in heart-healthy soluble fiber and unsaturated fat, which means it provides a steady stream of energy. They're also packed with energizing and de-stressing B vitamins.
6.) Oranges. The fruit's well-known vitamin C content aids in the poduction of carnitine, a molecule that helps the body burn fat for energy.
7.) Nut Butters. The fat and protein in nut butters provide a concentrated source of energy, plus the soluble fiber in peanuts works to control blood glucose and prevents saturated fat from entering the bloodstream. Most nuts--including peanuts, cashews, walnuts, and almonds--are loaded with the amino acid arginine, which may relax blood vessels for better blood pressure controlo. Look for nut utters that don't have added sugar, which could contribute to an energy crash.
8.) Salmon. A great source of omega-3 fatty acids--which keep cell membranes healthy and maintain cardiovascular health by regulating blood clotting and vessel constriction--cold-water fish like salmon, herring, and scallops are also high in protein and magnesium, which aids in converting glucose (blood sugar) into energy.
9.) Sea Vegetables. Ounce for ounce, seaweeds like arame, dulce, and nori contain the broadest range of minerals of any food, plus the B vitamins pantothenic acid and riboflavin your body needs to produce energy.
10.) Yogurt. This creamy treat is an excellent source of energizing protein and B vitamins--which are critical to converting nutrients into energy and reducing stress and anxiety--including vitamin B12, which fights fatigue by building strong, healthy red blood cells. If you want added flavor in a yogurt, look for those sweetened with honey or real fruit.
1.) Complex Carbohydrates that are high in fiber (like oats, brown rice, and other whole grains) are absorbe3d more slowly and sustain you for longer periods. They also help keep blood sugar levels stable, evening out energy highs and lows, and preventing you from overeating later in the day.
2.) Protein (soy, lean meats, nuts) helps regulate the release of energy throughout the day. "Protein takes a long time to turn into glucose, providing a steady release of energy into your body," say Jacob Teitelbaum, M.D., autho of "From Fatigued to Fantastic!" (Penguin/Avery 2007).
3.) "Good" Fats (cold-water fish, olive oil, eggs) are concentrated sources of energy. "A 2002 Danish study showed that the monounsaturated fatty acids (MUFA) in nut butters help curb your appetite so you don't overeat which helps keep you from feeling weighed down," says Heather Zwickey, Ph.D., of the National College of Natural Medicine.
1.) Granola with nuts and dried fruit mixed with yogurt
2.) Apple slices with cheddar cheese
3.) Whole-grain crackers and hummus
4.) Tuna fish on a whole wheat cracker
5.) Whole wheat bagel with nut butter and a banana
Hope this can help you guys!
Please remember to consult your physician before trying anything new. I am not a doctor and no information should be considered medical advice. Any information provided should not be used to take the place of advice from your personal physician or other professional. Links to other sites are provided for ease of research. Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of FibroChick. I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else will do that on my behalf. I recommend we all do the same!
Feng Shui & Maintaining Optimism
Thursday, April 15, 2010
Good summary
With FM I feel numb, dumb, fat, and a shadow of my former self.
Soooooooooo Tiiiiiiiiiired
Thursday, April 8, 2010
Advice for Friends & Family of Fibro Sufferers
http://www.healthcentral.com/chronic-pain/c/5949/100602/fibromyalgia
Tuesday, April 6, 2010
EXTREMELY Itchy Skin!! Anyone else????
Has anyone else experienced such intense itching??
Supplements and Fibro - I'm Trying
*I am not a doctor nor am I claiming to be. Please check with your own doctor before taking any vitamin, supplement or prescription medicine to verify what is best for you. Many supplements, though they are natural products, can have harmful side effects when mixed, mixed with certain prescription drugs and/or your body's particular conditions. Please work with your doctor on what will work best for you.
A.M.
Ginko Biloba -- to help with fatigue and memory
Ginseng -- for energy
Malic Acid -- for FM specifically it has been shown to help with improving overall muscle performance, reverse muscle fatigue following exercise, increase energy level and improve mental clarity; it also helps boosts immunity, maintain good oral health, boosts metabolism and promotes smoother and firmer skin
Rhodiola Root - is supposed to help with energy, but after taking for 1 month I have not noticed a difference, so I have stopped taking
Milk Thistle -- good for liver cleansing
CoQ10 -- I took 200mg/day for 3 months, and have recently stopped taking (is a bit pricey!) and have not noticed any difference. So unless I start feeling more crappy will probably stop the CoQ10
Calcium/Magnesium/Zinc -- Was taking this combo until I read a great article on calcium and magnesium on how they can work together AND against each other -- http://www.absolutelythepurest.com/other%20parts/mysteryandmagicmagnes.html
Magnesium -- So now I am taking 1600mg/day of magnesium (UltragMag from Vitacoast)
Vitamin D3 -- I had a deficiency, as do most FM sufferers apparently, after 2000IU for 3 moths I am back within good range and will start taking 1000IU to maintain.
Vitamin B-12 -- for energy, not sure I have noticed a difference though
Prilosec -- OTC -- helps with acid reflux
Limbrel - script -- started taking at the same time as Mobic, and within 48 hours my pain went from a 10 to a 3!! Was not sure which or if both were helping the pain. And since this Limbrel is $50/month and the Mobic is $4/month I have stopped taking this Limbrel, and still have little pain....
Mobic - script (and on the $4 prescription list at WalMart!) -- seems to work well for the pain control.
P.M.
Magnesium -- 800 mg/nite
Fish Oil -- is just good for me all around
Flax Seed Oil -- is just good for me all around
Ginger -- I read somewhere this is good for joints, and I know it is good for nausea (sometimes the magnesium makes my stomach queasy)
Melatonin -- 5 or 10mg/nite to help me fall asleep (I tried Ambien, but while it did help me fall asleep, I just could NOT wake up the next morning when I took it! Kept oversleeping for work!!)
Nortriptyline - script -- for daily pain & migraine prevention, 25mg ($4 at WalMart!)
LoSeasonique - script -- birth control, continuous, so I only get 4 periods a year (helps tremendously with my migraine prevention)
Anyhoo, these above are what I've read about/researched and am trying, pinning down what does work and what does nto seem to for me. Again PLEASE consult YOUR DOCTOR before you try and of these. I am not a doctor, I am just writing about what I personally am trying an my results.
Please remember to consult your physician before trying anything new. I am not a doctor and no information should be considered medical advice. Any information provided should not be used to take the place of advice from your personal physician or other professional. Links to other sites are provided for ease of research. Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of FibroChick. I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else will do that on my behalf. I recommend we all do the same!
Good Days!
A Double Edged Sword
So its a toss up, have no energy to do anything but also no pain, or have the energy to DO stuff but also have the pain?!?!?!
Thoughts on this?
Sunday, April 4, 2010
Guaifenesin and CFS?
Please remember to consult your physician before trying anything new. I am not a doctor and no information should be considered medical advice. Any information provided should not be used to take the place of advice from your personal physician or other professional. Links to other sites are provided for ease of research. Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of FibroChick. I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else will do that on my behalf. I recommend we all do the same!
Dishwasher Salmon - EASY and YUMMY!!!
- 1 tbs olive oil
- 4 6-oz pieces salmon fillet
- 1/4 cup lime juice
- kosher salt
- black pepper
- 1 lemon, cut into wedges
- heavy-duty foil
1. Grease the shiny side of two 12-inch squares of heavy-duty foil with the oil. Place 2 pieces of fish side by side on each square. Fold up the outer edges of the foil (to contain any liquid) and drizzle the fish with the lime juice. Season with salt and pepper.
2. Fold the foil closed to form 2 airtight packets. (To test the seal, press down on a packet gently with your hand. If air escapes easily, rewrap.)
3.Place the packets in the top rack of the dishwasher. Run a normal cycle. Remove the fish from the foil and serve with the lemon wedges.
--As long as a thermometer inserted into the thickest part of the fish reads 145 degrees F, its safe to eat - and probably pretty moist.