Monday, September 13, 2010

Invisible Illness Week Sept 13th - 19th, 2010

I found this post on another blog,, and have adapted with my answers. Read it, pass it along, fill it out, spread the word this week about invisible ilnnesses!


1. The illness I live with is: Fibromyalgia | Chronic Fatigue | Migraines
2. I was diagnosed with it in the year: 2009 | 2009 | 1988
3. But I had symptoms since:
— | early 80's at least
4. The biggest adjustment I’ve had to make is: Not having the energy to do as much as I would like; my whole life is one constant adjustment.
5. Most people assume: I can do something simple (like take vitamins, prescriptions or not eat a certain food) and be back to normal.
6. The hardest part about mornings are: Just getting out of bed is so hard :( I have 7 alarms to get me up!!
7. My favorite medical TV show is: Grey's Anatomy. I'm a sucker for HOT MEN!! :)
8. A gadget I couldn’t live without is: my smartphone; it saves me wasted time and keeps me connected
9. The hardest part about nights is: getting to sleep!  No matter how tired and fatigued I am throughout the day, I just cannot fall asleep come bedtime :(
10. Each day I take a minimum of: 24 pills – 4 meds,19 vitamins/supplements, 1 OTC
11. Regarding alternative treatments I: I do as much as I can, LOVE my yoga even though at times I struggle; I have discovered a lot of supplements and foods that help me in stead of prescription meds
12. If I had to choose between an invisible illness or visible I would choose: I would choose to have both if it meant someone else would not have to have one. I would not wish either on my worst enemy :(
13. Regarding working and career: I have a very understanding employer, and with adjustments I am able to keep working so far. I am far along enough in my career that its easy for me to successfully get my required work done.
14. People would be surprised to know: What all I keep inside. There is a lot of misery and anger that I do not share.
15. The hardest thing to accept about my new reality has been: Just trying to feel somewhat normal :(
16. Something I never thought I could do with my illness that I did was: I haven’t gotten there yet, but I am aiming to getting married and have a family :) Some days it seems like it might be an overwhelming challenge.
17. The commercials about my illness: Are WAY too BRIEF!!! They don't even touch the tip of the iceberg when it comes to fibro; It gives a false impression of how we suffer, and a false impression that you "just take Lyrica" and will "be all better."
18. Something I really miss doing since I was diagnosed is: Being able to do more active things
19. It was really hard to have to give up: sexy shoes :(
20. A new hobby I have taken up since my diagnosis is: Meditation; blogging :)
21. If I could have one day of feeling normal again I would: go to the zoo; I am afraid to attempt it these days, afraid I would get too tired and sore
22. My illness has taught me: How invincible I am
23. Want to know a secret? One thing people say that gets under my skin is: I just hate it when people assume things and play armchair doctor with me. Walk a day in my shoes and see how you deal!
24. But I love it when people: Take the time to understand me and what I go through.
25. My favorite motto, scripture, quote that gets me through tough times is: “Don't frown because you never know who may be falling in love with your smile"
26. When someone is diagnosed I’d like to tell them: You'll be ok, you are strong. Your reality is just different now.
27. Something that has surprised me about living with an illness is: The daily struggles, and new struggles and symptoms that pop up :( Each day seems to bring something different/new!
28. The nicest thing someone did for me when I wasn’t feeling well was: Make me laugh, I love laughing.
29. I’m involved with Invisible Illness Week because: I just learned about it and I’d like to make new friends who I can relate to and be there for!
30. The fact that you read this list makes me feel: Appreciative :)

Spread the love and fill out this Meme if you have a Chronic Invisible Illness and want to blog for NICIAW

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